Ugh!

So yes it’s been a while since I posted.  Lots going on…work, family, health.  Where do I begin?

I had an early dinner (drunch?  linner?) with friends tonight and it took every piece of energy I could muster to get dressed and get over there.  It was a laugh or two so I’m glad I went but I am finding it extraordinarily hard to be motivated to do nearly anything….writing this post included!

Still ‘maintaining’ on neomercazole.  Some days I imagine I am feeling “Graves-y” (sore hands, heart flips, anxiety, insomnia) but I push this to the back of my mind because the pathology doesn’t support that.  And without medical evidence it doesn’t exist right? 

Next week I’m heading to (yet another) gyneacologist who specialises in endometriosis.  I have all the symptoms and have had them for years.  Lots of terrible pain, bloating, nausea and the list goes on.  At least two weeks out of every four since I was 11.  However…past laparoscopies and examinations have found…absolutely nothing.  My doctors think this is a good thing.  Personally, I would like them to find something to treat and then maybe I could get on with my life!  They’ve already suggested another surgery and I’m keen to impress on them that if they open me up and DON’T find anything, wake me up and tell me to go home because I ‘don’t need any treatment’ I swear I will punch the doctor in the nose!  Ok that makes me sound like I might have Munchausens or something but my point here is that if you listen to your body, you KNOW when something isn’t right and it’s OUR job to make sure we get the proper care regardless of what the so called experts say!

It occurs to me of course that this issue is not unlike the journey of the Graves sufferer.  Most of us are not diagnosed until we present with several complaints.  For me it was at least 5 separate doctor’s visits before she agreed to test my thryoid  and only then at my insistence (her rationale for not doing so being that it had been normal 12 months previously…in fact the historical evidence is that it was ramping up dramatically over the previous 3 years).

Other updates…

No weight loss but in fairness I am not being strict about my diet.  I am still exercising and gaining strength.

My sister begins a 5 week cycle of radiotherapy tomorrow which she and everyone knows is largely a “buying time” strategy but you have to don’t you?

And I need to take better care of myself!   My mission for the week is to book a massage and a pedicure!

How is it that the start of this year went by so fast and in the last month it is going…….by…….so………damn……….slowly?