Three months has gone by so quickly since I wrote my last post. It seems years since I was struggling under the weight (pun intended!) of Graves. Since my cancer diagnosis it’s been all about that. I’ve had some blood tests that show my TSH is ‘normal’ but antibodies are still active. Thats more than a year on. The best advice I’ve been given is that sometime after chemo finishes (late June) they’ll get back to my Graves and see what needs to be done. Right now…I want my thryoid out. I’d be much happier managing with thyroxine everyday than the rollercoaster it’s led me on. Come July….rack me up and rip it out! I wish I’d been more assertive on that a year ago. My mind is made up pending a doctor agreeing. Coincidentally, my eminent breast surgeon is also an eminent thryoid surgeon so I’m sure I’ll get him on side!
Meanwhile, I’ve got 4 chemo cycles with 2 to go. I’ve not been able to work much due to intense reaction to the drugs and side effects. Work has been amazingly supportive. Their stance has been..come back when you’re ready. Hopefully, that’ll be sometime in July assuming I get the all clear from genetic testing which means I’ll proceed to radiotherapy and after that (cross fingers) ‘the all clear’ and back into a normal life. As normal as I can live life anyway!
Meanwhile, life goes on. Good and bad things happen. I probably won’t come back here much to post but will leave it here for a while as hopefully new Graves sufferers will use this diary as a resource as to what they might expect (
hopefully without the cancer part at the end of it!).
R xo
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