Graves takes all the fun out of being an alcoholic

People have asked me….’Can you drink alcohol while taking neomercazole (carbimazole)?’

As far as I know, the answer is ‘yes’. Is it as much fun? As far as my experience goes, the answer is ‘no’. For some reason, ever since I’ve been medicated for Graves, I just can’t push the alcohol boat out as far as I used to. After 2 or 3 drinks I’m just ‘done’. Not drunk, just not interested in drinking. It’s like my brain turns off from the experience or maybe my body doesn’t want to process it.

I’m sure some people are horrified that I might want to drink more in a way that sounds irresponsible (by the way kids, drink responsibly!)…do I sound like an alcoholic? Well I definitely inherited the family gene for overindulgence which in some previous generations has manifested itself as alcohol abuse. I used to have a cast iron liver and work in an industry where drinking is part of your career progression plan! My family are all ‘party people’.

But these days I’m the one sitting there at 11pm, tapping her toe and looking at her watch. In fact that was me last night. It’s the morning after my office Christmas party and I’m the only one around here not sick or in self-inflicted pain. Thats good I suppose…but it begs a more fundamental question. Has Graves made me boring?

The thrill of lawn maintenance

Not something that would normally float my boat but…

If you’ve read some previous posts then you know that this Graves ‘thingy’ has badly affected my muscle strength.  I’m two weeks in to a supervised training programme including weights training and while it’s early days, I’m remembering how good it is to feel fit and strong and looking forward to achieving some goals.

Yesterday I decided to re-attempt trimming the lawn.  The last time, I could barely lift the machine thingy…but this time managed to give the lawn a nice little hair cut, all within about ten minutes (it’s only a small patch) and without once having to stop in agony.  Afterwards, I went for a forty minute hike to and from the supermarket, carrying two heavy-ish bags home with me, up and down hills etc.  Ordinarily I would drive 2 minutes to get a litre of milk!  Now, my arms are a little sore today, but in that “I feel like I did something good” kind of way.  And last night I slept like a baby sans any kind of chemical aid…something I almost never do especially on a Sunday night.

I have been a little bad this week in terms of regularly taking my neomercazole.  I guess this is the danger in feeling better…without being overly symptomatic its easy to forget those two little pills every morning.  As I understand it, neomercazole (carbimazole) has a fairly long ‘hanging around time’ in the body so hopefully the odd inadvertant day off schedule is no big disaster?

Sticking to a fairly strict nutritional plan most of the time (more protein, less carbs, eat more often) but no apparent weight loss yet.   If things don’t start to shift soon I guess I may have to redefine what most of the time means, to all of the time (and even when I’m not ‘on plan’ I’m quite cautious).  The seasons are changing and nothing fits so hopefully I’ll start to see some improvement before I have to go buy a whole new wardrobe!  I love shopping but it’s not that satisfying when you have to keep going up sizes!

Numbers

Going to the endocronologist is a little bit like a highbrow game of bingo, and there are only a handful of numbers being played for. But if you get those numbers right then you win….something. Warm fuzzies? It’s funny too how you feel like you, the individual are responsible for achieving certain number, as if you had complete control over your physiology. If the numbers are good, you feel like you’ve achieved something. If they’re not right, you somehow feel like you didn’t work hard enough to get them right. The whole problem of course, of having an auto immune disease is that…you have no control. You wouldn’t sit around with a drip adding poisonous toxins into your own blood stream, or at least a sane person wouldn’t. But essentially thats what Graves is. And the evil genius behind it all are those pesky antibodies. The endo said to me ” I was a bit worried about you because your body wasn’t reacting the way it’s supposed to”. No kidding! But then I’ve always been a little…left of centre.

Finally my T3 is within normal. It’s at the upper end of normal but still….normal. The doc said it might take a month or so for my symptoms to catch up (I still have the odd heart palpitation , breathlessness, muscle weakness etc). She said within a few weeks I should start to find exercise somewhat easier so once I start my new job (next week) I’m going to get a trainer who can help me, especially with strength training. It’s hard to explain how weak I’ve become. I’m as ‘plushy’ as a foam sofa to use a funny phrase from a friend of mine. I used to be one of those people who did boot camps and could happily ‘drop and give me 20 man style push ups (at 8am on Saturday mornings…crazy right?!)…but not any more. Opening jam jars is hard enough! It’ll be tough but I know I feel better when I’m stronger and exercising regularly.

Meds have been reduced from 5 down to 2 carbimazole per day and I’ll stay on that regimen until October when I’ll have my next blood test and consultation (and pending those results, another in January). Apparently they’ll then review me in April next year (12 months into this journey) to see where my antibodies are at and what my chances of still having the disease are, along with potential for relapse (a 50%+ chance).

When I see the relapse numbers there’s a part of me that feels like I’m on a long journey towards a thyroidectomy ( as has my grandmother, my mother and two aunts) but I’m trying to stay positive that I might be the one for whom this rigmarole all works and I can remain surgery free!

Caffeine withdrawal is for sissies

I was dreading this part…giving up caffeine. Many years ago I attended a detox ‘retreat’ and my caffeine withdrawal was so bad I wanted to murder someone. I never did go back up to my caffeine drinking heights so this time around I’m not feeling soooo bad. Yesterday I made it through with only one weak cappucino and got a little bit headachy later in the afternoon…but survived. Today I had a cup of tea and a really weak instant coffee and didn’t miss a hot drink the afternoon. And today I probably felt better than I have in a very long time. I even made lists of tasks at work…and crossed some off. I wonder if the increased dose of carbimazole has kicked in already?

Looking forward to crossing work off but trying not to make rash / graves generated decisions. Caught up with my old boss and he helped me see a way forward and it highlighted to me how I’ve let my confidence break over this disease and trying to keep everyone else happy. I’m biding my time….