2-0

Updates….

My sister is doing well post surgery and they were able to preserve her kidney although she lost her spleen and a chunk of muscle.  We’re relieved there were no nasty surprises!  Next steps are recovery and aggressive radiation therapy.  She’ll be in hospital for a couple of weeks.  But this is good under the circumstances.

My endo called this morning and I am officially ‘normal’ on all counts with a TSH just creeping in at 0.6.  I’m sure there will be many who dispute that I am in any way normal….anyway, she’s allowing me to drop down to 1 x 5mg neomercazole per day for the forseeable future.  So I guess I am officially on the maintenance track…6 months into this journey.

In the meantime, all I wanna do right now is sleep……..

Princess Perfect

I came to the realisation this past weekend that I can’t be.  Perfect that is.  It goes totally against my nature to let things slide, but if I’m to retain my sanity over the next couple of months, I’m going to have to let some things go.  Quick status update….

My sister will have surgery this week and we are hoping for no nasty surprises.

No weight loss despite dilligent exercise and adherence to diet the majority of the time…none at all.  I have to say this is pretty discouraging.  I’m trying to keep it up because despite no weight loss I am definitely stronger and have greater physical stamina just to do everyday things.  ‘Glass half full’ I guess.

Had a blood test yesterday (about 2 weeks overdue) and will get the results in a couple of days.  Hopefully my levels will be normal, including anti-bodies, and the Doctor will give me the ok to go down to 1 x 5mg neomercazole per day.  I’m crossing fingers…although my left arm and hand has been aching this week which for some reason is usually an indication of how my Graves is doing (or it might be that I’m sleeping on my left…who knows)

Waiting on a specialist appointment (2 months away) to check out why my girl’s guts are so awful right now (this situation is not new but I am definitely at the end of my rope with this one).  I’m 39 and I think I’m done with them and seeing as they are not being used have suggested I would like them out…but of course the medical folks think that makes me a bit nuts. I mean, what if I decide to have a miracle, immaculate conception baby at the overripe age of 46 despite the fact that I’ll no longer have viable eggs?  The whole thought grosses me out.  If I end up bitter and childless I’ll adopt so I have offspring to transfer my bitterness to the way every other parent transfers their issues to their children.

Really really tired the past couple of weeks.  Just can’t seem to sleep well and when I do I wake up tired.  my doctor is only somewhat sympathetic and is suggesting hypnotherapy rather than begrudgingly prescribed drugs which I have to ration for important days where I REALLY need sleep…I mean, really?!  Really?!

Ok…off to see my poor, long suffering trainer who I think doesn’t want me in his ’stats’ because I’m making his trend line point the wrong way.  Blah blah blah…another day in paradise!

Will update later this week on my sister’s status post surgery and also my blood results.

Six months since diagnosis.  Probably 2 years since becoming symptomatic.  Time flies…!

The thrill of lawn maintenance

Not something that would normally float my boat but…

If you’ve read some previous posts then you know that this Graves ‘thingy’ has badly affected my muscle strength.  I’m two weeks in to a supervised training programme including weights training and while it’s early days, I’m remembering how good it is to feel fit and strong and looking forward to achieving some goals.

Yesterday I decided to re-attempt trimming the lawn.  The last time, I could barely lift the machine thingy…but this time managed to give the lawn a nice little hair cut, all within about ten minutes (it’s only a small patch) and without once having to stop in agony.  Afterwards, I went for a forty minute hike to and from the supermarket, carrying two heavy-ish bags home with me, up and down hills etc.  Ordinarily I would drive 2 minutes to get a litre of milk!  Now, my arms are a little sore today, but in that “I feel like I did something good” kind of way.  And last night I slept like a baby sans any kind of chemical aid…something I almost never do especially on a Sunday night.

I have been a little bad this week in terms of regularly taking my neomercazole.  I guess this is the danger in feeling better…without being overly symptomatic its easy to forget those two little pills every morning.  As I understand it, neomercazole (carbimazole) has a fairly long ‘hanging around time’ in the body so hopefully the odd inadvertant day off schedule is no big disaster?

Sticking to a fairly strict nutritional plan most of the time (more protein, less carbs, eat more often) but no apparent weight loss yet.   If things don’t start to shift soon I guess I may have to redefine what most of the time means, to all of the time (and even when I’m not ‘on plan’ I’m quite cautious).  The seasons are changing and nothing fits so hopefully I’ll start to see some improvement before I have to go buy a whole new wardrobe!  I love shopping but it’s not that satisfying when you have to keep going up sizes!

Deja vu all over again

New blood test back and a call from my endocronologist. “No change”. I mean…what? Despite increasing the dose from 2 up to 3 x 5mg carbimazole per day…no change. My T3 is still too high and is exactly the same as 6 weeks prior. So the doctor describes me as a puzzle and has asked me to go up to 5 tablets per day. Now most of the time, the dose is decreased…not increased! Can T3 toxicosis be resistant to drug treatment?

Meanwhile, I still get heart palpitations from time to time, but not as often as before. I still have trouble sleeping but always have had. And my muscles are sore and my skin is itchy. I guess I should have anticipated a set back.

Another month, another blood test, and another doctor visit at the end of it. Sheesh!

And also by then, a new job which I’m looking forward to. Hopefully, a change of scene will do some positive things for my health. I mean…c’mon!

And sleep is really important

I even slept well this past weekend and it shows. I’m going to try to be in bed by 9.30pm whenever possible. It makes all the difference.